In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board-certified neuropsychologist Karen D. Sullivan discusses Essential Tremor and the latest …
I deal with ET in my hands mostly and sometimes in legs. My question is how can I control it in my hands so I can cook and do things for myself
U r awesome
It appears that focused ultra sound is the new best treatment. Is it permanent and how many treatments do you need or does it vary. Please tell us all you know about it.
This is my way of blowing off stress and at the same time thanking you for the info. In about 3 hours I will undergo a Datscan study to see if my ET is possibly Parkinson’s. I’ve learned so much from your lectures and you always point me off in another direction for more info but sometimes I just need to “tell” someone. I am in the middle of the process of screening for DBS.. I’ve had ET for as long as I can remember (late teens), my brother had it, my niece has it and my two daughters have it. Strange thing is ALL of us have it ONLY on the right side! My neurologist said that is very unusual. This past year has brought some other health challenges and since then I have noticed my ET progressing much more quickly…….as well as my frustration level. I’m waiting for them to schedule my neuropsych eval (wish it was with you!) and then I will have completed all the evaluation. At that point, I no longer will have any control of whether I’m approved or not. Unfortunately, I have been totally unable to tolerate any of the medications so DBS is my only hope. Keep up the flow of good info! Would love more!
This is sad to hear as my 18 year old daughter who was finally diagnosed after many years of doctors and therapists. She just started college and studies art. I am not sure what her future holds knowing it will most likely get worse. My heart hurts for her. I wish I could take it from her!
I play music, bass guitar, as a way to lower the intensity of the tremor. It works remarkably well and is the only thing I've found that come close to alcohol. I've been toying with the idea of making a video to explain the techniques I employ and what I think might be going on, but honestly I'm now incredibly curious if anyone else has found benefit in playing music.
Love you to talk about head tremors. Thanks. Also does Botox help with head tremors?
Is head essential tremors normal?
need to learn about head temors
Would love to learn more on progression and how this relates to other injuries. you have helped me with your videos tremendously and your office gave me a list I am working on combing through to find someone with your level of expertise near Chicago. I have a large issue with "friend or foe" identification, short term memory, word finding, sense of smell, sense of taste, and hearing among other things. my ET started around 19 (29 now) and has moved to tremors in my head, neck, chest, arms, hands, and legs. I believe the reason i was unable to heal well from shoulder surgery and back and neck trauma is due to the constant tremors pulling my joints and other parts away from a " natural rest" . would love to hear if any studies have been done in relation to any of the above, and truly thank you so much for helping me start to understand what has been happening to me the past few years.
The 7 percent estimate is interesting! My ET has progressed to other parts of my body, and probably has increased in magnitude. However I would say my ET-related symptoms have increased more than anything (reaction to stress, extreme temperatures, gait and balance, psychological issues). And frankly, those are the most troubling effects of ET for me.
Do you know if Effexor is on the list for making ET worse?
Thank you so much for your continued support of the Essential Tremor community!
wold love to learn more on the balance and gait issue
My son (age 36) has spastic cerebral palsy; high functioning but confined to a wheelchair. He also has periods of anxiety and panic attacks…has always been easily startled. Any connection?
Really interesting / i’ve Progressed over about 5 years – I think a little less than 5% but I have a cavernoma and its a little more complicated as it is near The cerebellum. I find meditation helps and co ordination body movement exercises
I deal with ET in my hands mostly and sometimes in legs. My question is how can I control it in my hands so I can cook and do things for myself
U r awesome
It appears that focused ultra sound is the new best treatment. Is it permanent and how many treatments do you need or does it vary. Please tell us all you know about it.
This is my way of blowing off stress and at the same time thanking you for the info. In about 3 hours I will undergo a Datscan study to see if my ET is possibly Parkinson’s. I’ve learned so much from your lectures and you always point me off in another direction for more info but sometimes I just need to “tell” someone. I am in the middle of the process of screening for DBS.. I’ve had ET for as long as I can remember (late teens), my brother had it, my niece has it and my two daughters have it. Strange thing is ALL of us have it ONLY on the right side! My neurologist said that is very unusual. This past year has brought some other health challenges and since then I have noticed my ET progressing much more quickly…….as well as my frustration level. I’m waiting for them to schedule my neuropsych eval (wish it was with you!) and then I will have completed all the evaluation. At that point, I no longer will have any control of whether I’m approved or not. Unfortunately, I have been totally unable to tolerate any of the medications so DBS is my only hope. Keep up the flow of good info! Would love more!
This is sad to hear as my 18 year old daughter who was finally diagnosed after many years of doctors and therapists. She just started college and studies art. I am not sure what her future holds knowing it will most likely get worse. My heart hurts for her. I wish I could take it from her!
I play music, bass guitar, as a way to lower the intensity of the tremor. It works remarkably well and is the only thing I've found that come close to alcohol. I've been toying with the idea of making a video to explain the techniques I employ and what I think might be going on, but honestly I'm now incredibly curious if anyone else has found benefit in playing music.
Love you to talk about head tremors. Thanks. Also does Botox help with head tremors?
Is head essential tremors normal?
need to learn about head temors
Would love to learn more on progression and how this relates to other injuries. you have helped me with your videos tremendously and your office gave me a list I am working on combing through to find someone with your level of expertise near Chicago. I have a large issue with "friend or foe" identification, short term memory, word finding, sense of smell, sense of taste, and hearing among other things. my ET started around 19 (29 now) and has moved to tremors in my head, neck, chest, arms, hands, and legs. I believe the reason i was unable to heal well from shoulder surgery and back and neck trauma is due to the constant tremors pulling my joints and other parts away from a " natural rest" . would love to hear if any studies have been done in relation to any of the above, and truly thank you so much for helping me start to understand what has been happening to me the past few years.
The 7 percent estimate is interesting! My ET has progressed to other parts of my body, and probably has increased in magnitude. However I would say my ET-related symptoms have increased more than anything (reaction to stress, extreme temperatures, gait and balance, psychological issues). And frankly, those are the most troubling effects of ET for me.
Do you know if Effexor is on the list for making ET worse?
Thank you so much for your continued support of the Essential Tremor community!
wold love to learn more on the balance and gait issue
My son (age 36) has spastic cerebral palsy; high functioning but confined to a wheelchair. He also has periods of anxiety and panic attacks…has always been easily startled. Any connection?
Really interesting / i’ve Progressed over about 5 years – I think a little less than 5% but I have a cavernoma and its a little more complicated as it is near The cerebellum. I find meditation helps and co ordination body movement exercises